Posted by: purpleandrew | September 9, 2010

Morning of the 4th and some other news

Hi all,

Well Leslie is probably now sitting in one of those comfy but somewhat space age looking chairs in the Beatson with a drip in her arm as she works her way towards the end of her Stephen King book.

This is session 4 and we had a good chat with the chemo consultant yesterday.  As usual, some adjustments are being made to the treatment and more importantly the steroids and anti-sickness medication to try and make the after effects less unpleasant, and trust me, watching Leslie in pain and throwing up or with the skitters is not fun, especially when they happen at the same time. And NO, that is not a comedy joke, i can feel her ribs being assaulted by the severe spasm when this happens.

Session 4, this is quite an important one, well they all are, but in the grand scheme of things Leslie is booked in for 6 sessions. The chemo consultant said last time she would be delighted if we can get to 4. She is worried about the severity of Leslie’s side effects and has suggested that we can call it a day.

We know that in this program of treatment, Leslie can say NO at any time, but as we all know too well, this is the bad medicine that is the good medicine and if 6 was the prescription at the start, then i can assure you that Leslie will fight all the way to get to that chair for sitting number 6. We know she doesn’t have too, but as with all choices, there are consequences. If Leslie wants to make the NO choice, we will need some numbers on the big questions, like risk, what if? how much does this diminish life expectancy and quality of life etc, you know, those little things!!!!

But, if Leslie wants to say NO, then i am right there with her, no matter what. Thick and thin, all the way.

So now we play the waiting game. If things go according to the routine to date, then sometime Saturday afternoon Leslie will start to feel like shit and sometime Sunday afternoon the bus will hit. Then it will be the days of sickness and the shits, aching joints, numbness, dizziness and stumbling about and hey, we may get a few new ones.

We shall see and i will be there to pick up, clean up and support in my own inadequate way.

Other News

Now, those of you out there who know us will know that i have been constantly and perpetually tired and just without energy for a very long time. Some years actually. Leslie’s friends and family haven’t actually known me not to be knackered and ready to drop.

Well guess what, this chronic fatigue is Myalgic Encephalomyelitis, yep, M.E.  Andrew, the purple one, has M.E.

Actually, i have kinda known for some time, but there is a reluctance in the medical world to come out and say it. You know if someone has a broken leg, they fall over, there is a loud crack and the poor sod is writhing around in agony.  Diagnosis absolute.

Brain tumors and cancers can be diagnosed by scans, tests, you can open someone up, say “there it is” and cut it out.  I know this is a gross over simplification, but you know what i mean…………..

ME, is just someone flopping about being tired all the time. Get some rest, have a break and presto, job done. Not with things like ME and other unseen illnesses. I have been tested to there and back, repeatedly, you name it, i have probably had the test, all negative. So yesterday my GP said i had ME.

I now have some tablets from my GP to try and keep me more awake during the day. I think it is some form off legalized speed or something like that, so we shall see what happens.

But, my main priority is Leslie and helping her through this chemo, and trust me on this, that is exactly what i am going to continue to do.

So now, as well as being joined at the hip, we both have the same condition, we will be the ME twins!!

It is a big relief to know what it is, i can do something about it, at least from the mental side of things. So, if i need to nap during the day, i shall.

This is the purpleone signing off, i have to try to tidy the house up while Leslie is away. Quite interesting seeing as i have ME, but those 2 words that doesn’t mean i have to be a vegetable. i shall try to do what i can, when i can.

TTFN
Andrew

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Responses

  1. Hey both of you! Justback from Northern ireland. HOw did session 4 go? How is Leslie? How are you, Purple Andrew? JTx

  2. There is no doubt about it if anyone is going to get Leslie through to her sixth sitting it’s you Andrew ! Love to the ME…..oops sorry MAgnificent Twins !!! xxx Mags


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