Posted by: purpleandrew | January 20, 2012

Another Energy Sapper!

What Happens When We Lose Our Connection?

 Recently I got very excited.   Now, normally that is nothing to write home about, however, you ask anyone with M.E. when the last time was they got excited and they’ll probably say they can’t remember or they haven’t got the energy.

Energy is the key word here, and it does have a physical, organic root to go along with the metaphysical and spiritual curtain that few of the medics will go beyond.

So what lies behind the curtain that has them all so freaked out?

Myalgic Encephalomyelitis, AKA Chronic Fatigue Syndrome, AKA Post viral Fatigue Syndrome and in the good old US of A it has the impressive handle of Epidemic Neuromyasthenia.

So when your GP tells you it’s all in your head, you can actually correct him by saying not only is it in my head it is also in my spinal cord and in the nerve endings in my muscles – see your medical dictionary for clues!

Dr. A Melvin Ramsey, Hon Consultant Physician, Infectious Diseases Dept. of the Royal Free Hospital describes M.E. in his paper circa 1986 as a ‘Baffling Syndrome with a Tragic Aftermath’. He also explains the different terminology used in it’s diagnosis.

Myalgic Encephalomyelitis aka, Chronic Fatigue Syndrome, aka Post Viral Fatigue Syndrome; and in America they call it Epidemic Neuromyasthenia.

Another Doctor whose paper was summarised in The Haworth Medical Press, the title, Betrayal By the Brain: The Neurological Basis of Chronic Fatigue Syndrome, Fibromyalgia Syndrome and related Neural Network Disorders was written by a Dr. Jay Goldstein, in which he describes a conceptualisation of CFIDS/FMS as “impaired sensory information processing in a neural network, resulting in dysfunctional responses. Triggers include things like genetic susceptibility, neonatal stressors, and elevated cortisol levels activated from an early age due to various situations including sexual, physical, emotional abuse.

A Dr. Charles Shepherd has acknowledged that it has links to certain toxins and pesticides, organophosphates being the main contenders.

With all this weighty evidence going on how dare the GP’s call this Hypochondria?

And, should we wish to go and inspect the aforementioned curtain then we can look to another eminent scientific source Dr. Deepak Chopra, who writes prolifically about the cells eavesdropping on one another and their ability to hold memories, particularly traumatic memories.

Take into consideration the depression angle, a lot of physicians say that M.E. is just another form of depression and is therefore psychological, it has been proven though, that cortisol levels in the clinically depressed are low and yet in M.E. they are high, so the answer to that would be that although depression may follow an episode of M.E it is not in itself a component of the disease.

I have M.E. and I have a good idea why I have it. My biggest problem has been how to manage it for once it is got it will not go away!

It hibernates and lays in wait, it catches you out when things are going relatively okay then you catch a virus and it’s basically goodnight Vienna for anything up to 18months or longer.

I have found that actually recognising when I need to rest is the key and acting upon that information, I REST! Dr. A. Melvin Ramsey agrees with me on that one; only wish I’d known that earlier.

He writes, ”The degree of physical incapacity varies greatly, but the dominant clinical feature of profound fatigue is directly related to the length of time the patient persists in physical effort after it’s onset; put in another way, those patients who are given a period of enforced rest from the onset have the best prognosis.”

So, NO, it is not the best thing to work through the flu, it is not the best thing to go back to work soon as you can put your feet to the floor without falling down. We need time to heal and if we don’t take it the cells in our body will mutiny and then we really will find that creek and how necessary a paddle can be.  It is all very well having a work ethic, but how good is it if it means you can only work for a significantly shortened length of time?

The government is not too helpful in that department either, it could make things better with more legislation on sick days and wellness programmes in the workplace, not to mention tightening up on the pesticides and toxins that are carried on ships in our waters and used on our food and our animals on a daily basis. Ultimately paying attention to the pandemic that is M.E and perhaps looking into a probable link with organophosphates not just in agriculture but in Veterinary Surgeries from the 1950’s right through to the 1990’s when they began to really regulate and ban them.

Getting level with M.E is an expensive and epic journey. The NHS does not supply most of the treatments that are helpful, and even when they do it is down to the mind set of the GP that has to refer you to it which will again depend on his budget.

For myself, it has been an awakening to how much more we can do with natural things and spiritual things. Don’t get me wrong there are extremely interesting people out there who have some very unique ways of looking at things; all in all though sorting through the chaff there is help available and again it is at a price, isn’t everything these days, but what price the ability to at least function reasonably on a daily basis?

The Shamanic way of looking at it is that a soul part has been lost and there is a void there that has been filled by the dis – ease, this is bourn out by the neo natal stressors and other triggers mentioned above. It also bears out the mind controls the body thing and Dr Chopra’s theories on cell memory.

The NLP and Ericksonian Hypnosis way of looking at it, hey, it works for me and helps me to talk to my body when it is tired and aching – my unconscious mind is a vast storehouse of resources – as is yours – just waiting to be used, making the connection is the key.

Then there is the Reiki, Aromatherapy massage, Reflexology et al. Touch and smell and relaxation, it really does make you feel better and when you feel better you feel less tired. Being tired is tiring sometimes you know the hypothalamus and the limbic system they don’t need drugs, they need some TLC; and we all know there’s just not enough of that to go around these days.

So what to do, look for yourselves, find a practitioner of any of the above mentioned therapies and some more, whatever is right for you – there’s Indian Head Massage, herbalism, sound therapy, there are so many and there is no one right answer for me it was a combination of the Shamanic, Reiki, Reflexology, hypnosis/NLP, and a great support network that I had to find for myself, my GP is of the Hypochondriacs persuasion… It seems he ignores the fact that the brain is the one organ in the body they know damn near nothing about!  In fact even those who do believe it is a dis-ease cannot agree on its basic form.

Until they do come to an agreement, those of us in the eye of this particular storm must find our own ways of dealing with the day to day workings of this beastie.

When you can, do. When you cannot, don’t. Is the simplest way to say it. What I will say is look carefully at diet and and things that make you sit up and take notice (you will know when that happens). Utilise all that is available and find a concoction that is right for you. This is not a one size fits all deal, that is the reason we don’t have a pill for it yet.

look after yourself, by taking care of yourself as best you can and if that means learning how to do that which you cannot afford to have done as a treatment, my advice is to go for it. That in itself is helpful and healing.

For more info or indeed an appointment with one of us see the website below.

Excerpts from papers found on www.meactionuk.org and www.afme.org.uk

Contact me at  www.spiralheart.co.uk

Advertisements

Responses

  1. A really informative read 😉

    • I love reading these articles because they’re short but intofmarive.

  2. LOVED THIS. I am a shamanic practitioner and faculty for the Foundation for Shamanic Studies here on Bainbridge Island. I had CFS that got increasingly worse for 11 years as I took a remarkable spiritual adventure looking for ways to understand what the illness was trying ti teach. In year 11, I found shamanism and indigenous shamanic mentors told me I had “shaman sickness,” and the illness would be cured when the compassionate helping spirits said that it was time because I was meant to be serving people through shamanism. After a year of study, punctuated by months of flare ups, I took the journey to learn the wisdom of the illness. I was cured in four hours. Since then, I have devoted my entire life to working with people who need help or teaching them how to use shamanism as a personal spiritual practice. Every one of us is unique and so reductionistic ways of working with illness don’t work well. Don’t get me wrong — I love and use allopathy, but I understand its limitations. People who are ill who see this will be happy they did. Your wisdom is huge, and I sincerely wish you great health and recovery. Don’t ever let someone tell you you cannot recover. I, and others like me, are living proof that it IS possible.

    Yours,
    Lora Jansson, Bainbridge Island
    http://www.lorajanssonshamanicservices.com for more information

    • Hi Lora,
      thanks for this, we both are working through the machinations of Spirit’s healing and then sitting with the understanding of it all. We tend to forget how much time is our conception and not Spirit’s at all. Everything in its own time is a popular chant but when there is no time it is time to know that paradigm.
      People tend to hear the word healing and understand the word cure…if only it were that simple. We are here for our challenges and lessons to be taken and learned so that we may serve the greater good perhaps. Once we have learned then there is something else to take on board however until that time our schooling by Spirit is varied and long and indeed challenging but rarely something we cannot bear. I somtimes think that M.E. is the only way to STOP our world long enough for us to realise we have so much more to understand and love in life.
      thanks again
      Andrew & Leslie


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Categories

Hand me a Mirror!

If this is vanity publishing ... hand me a mirror!

Sally Ember, Ed.D.

Author, blogger, nonprofit leader, educator, Buddhist meditator, feminist

Services to Literature

Literary Perspective, Advice and Support from Alexa Radcliffe-Hart

wrapped up in books

reading, writing, librarying

Zen Scribbles

Sometimes a pain, sometimes a klutz, sometimes even a Grammar Nazi, but always a writer, always a reader, always a self-proclaimed chocoholic.

One Writer and his Blog

A Blog is a writers best friend

So Many Books

the agony and ecstasy of a reading life

Book of words

Books, reviews and all things worth reading

Marsh Sport Blog

"Without self-discipline, success is impossible, period"- Lou Holtz c1937

bottledworder

easy reading is damn hard writing

write meg!

Another take on writing, reading, loving -- and eating

Bold Strokes Books Authors' Blog

Authors blogging all the time!

101 Books

Reading my way through Time Magazine's 100 Greatest Novels since 1923 (plus Ulysses)

BookPeople's Blog

Austin's largest independent bookstore since 1970 - 603 N. Lamar Blvd.

blindoggbooks

Author Tim Baker shares his thoughts, hopes and dreams. (mostly his thoughts)

The Writer's Bag of Tricks

Susan Brooks, Editor in Chief at www.literarywanderlust.com

The Digital Consonance

Writing and Digital Art for the Creative and Curious

A Writer's Life

I'm Rebecca Mahoney, a freelance journalist, fiction writer & manuscript editor who likes to chat about books & writing, share editing tips, and muse about the freelance life. Visit my full website at rebeccamahoney.com.

%d bloggers like this: